Thursday, April 23, 2015

TBT: Boyhood

A ThrowBack Thursday album of Ed’s early boyhood years. From sitting in a country sink to hanging around my Dad's Ford Mustang.
Bath time in Grandma's sink. Rub a dub dub

Snoozing with the 'rents

Visiting the grandparents on the farm

My back stairs

Me and my Dad

Chilling in a blowup pool

Shiny. I can see myself

Pretty much have always had the same belly.

Gotta wear shades

Bow ties are hip

I like rockets, they are so phallic.

Cruising the neighborhood

Let's put on a show

Posing with younger brother and sister

Not an Apple Watch

Posing with another phallic thing

Who doesn't like a pony?

Soaking in the sun at camp.

Cub scout

Mustang, a pony car

Planting season

Early drag. Everybody ought to have a maid.

Family picture 1968

A player

Formal picture

Speed racer

Casual Friday

Saturday, April 18, 2015

Another cancer challenge

Ed and Eddie at a benefit
Unfortunately, we learned this week that the lower-level, maintenance chemo treatment that Ed began in January (which was supposed to suppress any further growth/spread of tumors) has not worked.  The nodes in his lungs from the metastasized colorectal cancer have continued to grow and multiply. The only thing this chemo drug was doing was causing his skin to break out in intense acne-like rash from the top of his head to his waist.  The good news is that it appears the cancer has not yet spread beyond the lungs.

Beginning next Thursday, he will once again begin a multi-month regime of the highly toxic, 3-days-every-two-weeks chemotherapy (FOLFIRI).  These treatments will be similar to what he was on last year (treatments that in fact did diminish the cancer to non-detectable levels).  However, the drug that has caused the extreme neuropathy in his hands and feet will be substituted with a drug that will have different side effects (probable loss of hair, increased diarrhea, etc.).  If this combination works after 4-6 months, then he will be on an ongoing subset of the same drugs for maintenance, as long as they work.

What this means in terms of day-to-day life is a return to some of the things we had to do last year:
- No unpeeled, raw foods in his diet.
- Asking any friends/family who have runny noses from colds, fever, etc. to avoid contact with him.
- Avoidance of extremely large crowds (like Giants baseball games, unfortunately).

We will continue, as we did last year, to go to theatre, opera, and ballet as much as we can (avoiding the 3-4 first days of each two-week sequence).  He plans to continue work except for Day One of each two-week sequence.  We hopefully can make a few weekend trips in the off weeks of the treatment.  Our oncologist wants us not to cancel at this point our August trip to Europe.  If the treatments are working as they did last year, we might be able to pause treatments for a month to make the three-week journey.  That is the goal she is working toward.

And so what can you do?  Just continue your good thoughts, prayers, drumming, meditating, or whatever works for you.  Ed appreciates it all.

We know we are not the only ones among our and your friends/family facing these kind of life-changing events with uncertain futures.  Together, we will all bond for strength.

In the meantime, we are making each day count to the max.  Slowing down is not yet what we plan to do on most of those days.

Thursday, April 02, 2015

Passover: a joyous and gay festival

Passover (Pesach) begins Friday. We are hosting our Seder dinner on the second night, Saturday. That evening, a room full of men, 21 of them, will be sitting down and retelling the ancient story of freedom and liberation and having a wonderful meal.

I have written and posted about our gay men's Passover Seders many times. Here is a collection of some of my favorite informative posts.

The story of liberation. In addition to telling the Exodus story, we also tell and remember the lives and contributions of gay Jews.
Remembering the Stories of Gay Jews in the History of GLBT Liberation:

On our Seder table we have both the traditional Seder plate and a GLBT Seder plate.

Some of the readings we incorporate into our service around the table.
Gay Memorial Candle and a Retelling of the Ten Plagues in the GLBT community:

Our Seder menu. Lovingly prepared by my talented husband.

Related Posts Plugin for WordPress, Blogger...